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Leaker Hotel Rates


Wednesday, March 12, 2014

I make the ten-hour drive to Durham, alone, once again. It was so much easier with Karen helping me navigate. She got a large parabolic mirror so she could see behind her so she could tell me when it was clear to merge to my right. On our first trip down, we were very surprised and frustrated by the sudden appearance of a six-lane highway to our right, right as we wanted to exit!

Fellow leaker, Lee Campbell, who lives in the Durham area, negotiated a Leaker’s Rate with Comfort Inn Medical Park, and Durham Homewood Suites. Karen and I liked Comfort Inn because it was simple, nothing fancy, the hospital was just down the same street. There was a pharmacy and good restaurants right across the street. Contact me and I’ll give you the magic billing code you need if you are going to Duke for a CSF-related procedure.

Karen was always too incapacitated to make it across the street, so I’d bring back food from the restaurants on occasion. Mostly, what we ate were Amy’s Kitchen dinners. Also, at least once, I’d make a trip around the corner to Whole Foods Market and bring back some fresh salad and other healthy things that we could not get at home. I went to the Whole Foods Co-op in Erie, PA expecting it to be just like the one in Durham. I was disappointed. You could put four of the Erie Whole Foods in the one in Durham. (Now that I look at those websites, it is apparent they are two different companies.)

Please help us find connections to the hotels near Ceadrs-Sinai, not being from that area we’ve had no luck making the proper connections with the right people to get better rates like we have in Durham.

Karen’s frugalness lead her to check the hotel website room rate daily, while we were already in the room. She learned that if the hotel is not full on a given day they will lower the rate in the hopes of filling the room. The going rate for the Elan Hotel when we were there was $200 per night. She got rates for $112 and $153 a night more than once when we were there.

The downside to any hotel in the L.A. area is if there is a convention in town, or during Duke’s graduations in Durham. Those people know to schedule a year in advance and we don’t; the hotels raise their rates during those, if you can get a room at all.


Learn about Spinal CSF Leaks:

http://spinalcsfleak.org/about-spinal-csf-leaks/





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