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Back Home

Thursday, June 13, 2013 at 11:26am EDT

I am home. My head pain is the same as I had before surgery. I don’t think surgery is a failure, I believe the drain site is the problem. … Dr. Schievink wants to wait 3-4 weeks to see what happens before treating it.


Thursday, June 13, 2013 at 5:31pm EDT

Ten Fukitol pills really helped me sleep last night.

[Sounds excessive to me. I no longer have any of her medication in the house. It was all turned over to the State Police investigating Karen’s suicide.]


Thursday, June 13, 2013 at 5:39pm EDT

I do not question the success of my surgery in Los Angeles, (yet). I don’t think that my spinal headaches or other neurological procedures will improve until the lumbar drain site is treated. I believe the drain caused a new spinal fluid leak. The resident/intern that removed my drain did not know what he was doing, and the attending doctor wasn’t there. I wasn’t too assertive because the plan was to do surgery on that area, and fix any holes. In surgery, they decided not to operate on that area. … I didn’t feel heard. My limitations right now are so many that it is easier to say what I can do. I can get myself in and out of bed. Go for short walks on level surfaces. I can sit only for short times. I can’t dress or undress myself. I can’t lift anything heavier than a glass of water. Depending on the effects of pain medication, I can drive.


Thursday, June 13, 2013 at 5:39pm EDT

They cut through bone, muscle, ligaments, and other tissue.


Thursday, June 13, 2013 at 6:46pm EDT

I expected my head pain to change, or at least feel different. That’s not happening. When they injected 20cc of dye for the CTM, I got very HP for about an hour and a half, then went back to LP. There was an hour delay between the myelogram and CT portion of the test. By the CT portion, I was almost in LP again. I expected them to see some contrast in my epidural space. They saw nothing.


Thursday, June 13, 2013 at 7:47pm EDT

Technically, any anesthesiologist can do blood patches. Dural punctures are common with epidurals during child birth. With my history, I won’t allow any anesthesiologist or interventional radiologist to poke needles in my spine. … Very few doctors do fibrin glue patches. Fibrin glue patches have a higher success rate, and have more complications. They do blood and fibrin glue patches at Duke. I’ve had both there. I sent Dr. Schievink an email about my security problem at LAX. If security patted my incision, I could not hold back the screams from the severe pain increase! That ‘patting’ could undo something he did in surgery. My painful screams would cause more security problems. I may have called you for a place to stay while we checked Amtrak, if security did not let me through.


Thursday, June 13, 2013 at 10:40pm EDT

To: Wouter Schievink, M.D.

Subject: Karen Paddock, issues coming home.

My head continues to feel better lying down. We flew home today. We had first class tickets, a non-stop flight and wheelchair assistance. My headache, eye and ear symptoms are now as bad as they were when we flew out to CA. My surgical pain is manageable. The headache is not. What should I do?


Thursday, June 13, 2013 at 11:10pm EDT

Maybe LAX thought the tiny bit of swelling around my incision was a bomb? When your dura leaks CSF long-term, your brain compensates by making extra CSF to try to raise the pressure. Seal the holes, your brain continues to make extra CSF. Now you have intracranial hypertension which is just as painful in a different way. I had rebound intracranial hypertension after my treatment at Duke last fall. Pressure lowering medication did not lower the pressure enough. I made an emergency trip to Duke for them to put a 20 gauge hole in my dura, and leave there as a natural shunt. I continued to need pressure reducing medication but at a lower dose. I stopped taking the pressure reducing medication cold turkey in February. Within 10 days my CSF pressure rose high enough to blow more holes in my dura, putting me back into intracranial hypotension. Current testing technologies do not always find the holes. … My thoughts are there is a huge size difference between the hole a single 20 gauge needle leaves, and the two holes 14 gauge and 18 gauge that I now have. The two large holes keep me in intracranial hypotension, whereas a single smaller gauge hole did not.


Friday, June 14, 2013 at 12:00am EDT

Do you feel that you got any lasting benefit from the HV blood patches? I feel that I have some idea where my leaks may be from one of my patching sessions at Duke. Even if he would have suggested it, I would not have allowed surgery on those areas without the tests objectively showing a leak.


Friday, June 14, 2013 at 8:01am EDT

Did you have a DSM? How long have you had symptoms? I am worried that my headache is unchanged. I did the home test for POTS but my BPM increased only 19. I don’t have symptoms of POTS. I don’t want to have the tilt table test because that would aggravate my chronic tendon problems. Maybe my chronic tendon problems are caused by a connective tissue disorder, and that could affect my dura. No one can answer that.


Friday, June 14, 2013 at 9:45am EDT

It’s a long hard recovery. I can’t do more than get out of bed and walk small amounts. It’s too early to know if surgery is successful.


Friday, June 14, 2013 at 11:12am EDT

Sometimes I feel it was a waste. Other times, I wish … patched the lumbar drain site. I believe that I am leaking there. I feel like I failed Dr. Gray and Dr. Schievink’s treatment and am out of options.

[A patient should never feel they failed the doctors. ]


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http://www.givepainavoice.org


Leaking at My Incision Site

Friday, June 14, 2013 at 12:27pm EDT

I’m sure I’m leaking at my incision. This is not right.

I took pictures of the increased swelling in my back and sent them to Dr. Schievink. My headache has gotten horrendous and is better lying down. Dr. Schievink wants to see me back in L.A. He said it looks like a collection of CSF at the surgical site. I don’t have a date.

[We were home all of three days. ]


Incision Leak


Emergency Return Trip to L.A.

Friday, June 14, 2013 at 1:10pm EDT

I don’t have a choice, I have to come back. The skin is stretched so much around the incision that it feels like the incision is about to rip open. My head is horrendous. If … to me about the headache and not required that I wait 3-4 weeks for further treatment, I wouldn’t have all this hassle and expense again.


Friday, June 14, 2013 at 1:16pm EDT

I am worn out and exhausted. I am supposed to be recovering from major surgery, but I can’t with all the traveling. No one closer to home deals with this condition.


Friday, June 14, 2013 at 1:39pm EDT

… It may not be a fair comparison but I knew how my headaches changed after patching with Dr. Gray They didn’t go away, but changed. I expected a similar thing to happen when I was successfully patched during surgery. I know my body.


Friday, June 14, 2013 at 2:18pm EDT

My hubby will go along. The expense of two trips is horrendous. It’s not coming out of the site, but he thought it looked like a CSF collection at the site.


Friday, June 14, 2013 at 4:16pm EDT

I don’t know when we will fly out yet. I see the doctor in L.A. on Tuesday with surgery on Wednesday. I am exhausted. I am supposed to be resting to recover from major surgery last week. I can’t rest, and have another major surgery next week…


Friday, June 14, 2013 at 7:32pm EDT

… Do you have any idea what effect Bob working remotely for many weeks/months could have on keeping his job? I have to do this treatment to save my life. … I don’t know if Bob would lose his job but I always worry…

[Clearly the end result of Karen’s suicide shows I spend too much time at work. I sit in front of a computer there nine hours a day, why can’t I do it at home, where I have a better computer?]

The emotions and feelings that I deal with of watching life go by as healthy people can have fun while I can barely care for my own activities of daily living are difficult. Add the stress of making doctors appointments, making sure things at home are cared for, traveling, etc when I feel physically awful, keeping bills paid while we are gone is worse than awful. Planning the logistics of a long distance trip, etc. I should be resting to let my body recover from surgery. I can’t do that when complications need treated. I hope that you never get a chronic painful illness. You’ll learn the hard way that many of your friends will abandon you after a few months. Your support network will become smaller just when you need additional support. …

I see the doctor in L.A. on Tuesday with surgery on Wednesday. I am exhausted. I am supposed to be resting to recover from major surgery last week. I can’t rest, and have another major surgery next week. … if you’re already coming to [our area] to shop for yourself, a simple phone call asking me if I need anything at the store. Another example, make extra food when you make a meal and … drop it off on [the way by]. Simple thoughtful things are appreciated. There are ways to be helpful that do not consume much of your time.

[I cannot emphasis enough the importance of the Little Things. A phone call asking if you need something, run the sweeper, brush the dog. Sadly, people that do not have chronic illnesses do not understand this.

“I wish to do something Great and Wonderful, but I must start by doing the little things like they were Great and Wonderful” – Albert Einstein.

To someone in pain the Little Things *are* Great and Wonderful!]


Saturday, June 15, 2013 at 10:47am EDT

The CSF collection in my back is getting larger, and the skin stretching tighter. We don’t want the incision to rip open from that pressure. I emailed the doctor asking what to do. He put me on the pressure reducing medication, Diamox. I already had a low pressure headache, Diamox makes that headache, nausea, vision and ear issues related to low pressure so much worse but we have to lower the pressure on the incision.


Saturday, June 15, 2013 at 1:16pm EDT

I have chronic cerebral spinal fluid leaks. The research into this condition just took off within the past 10 years.

If you want treated, you have to go where the research is being done. Local doctors don’t treat this.

The research is being done at Cedar Sinai in Los Angeles. I am having complications. The cerebral spinal fluid collection in my back is growing larger and the skin stretching tight.

I emailed the surgeon, He wants me to start Diamox, a spinal fluid pressure reducing medication so the pocket doesn’t rip open the incision. I am already in too low CSF pressure because of the CSF collection. That already low pressure headache, nausea, eye and ear issues are so much worse on Diamox. I expected that.

I can’t believe that I am flying across the country again so sick. I should be resting and recovering from the first surgery. That is impossible to do planning a second trip on such short notice.


Saturday, June 15, 2013 at 3:03pm EDT

We’ll fly out tomorrow. I see the doctor on Tuesday with surgery on Wednesday.


Saturday, June 15, 2013 at 3:41pm EDT

WOW...I am astounded that my cousin in L.A. is being so kind and helpful. I never expected this! I must be inconveniencing her, but she certainly does not make me feel that way! I am shocked that someone cares so much! I have no idea how to be a good house guest when I am so sick other than buying groceries for them.

[Joie Shettler and the Radio Rebels.]


Saturday, June 15, 2013 at 3:41pm EDT

The CSF collection in my back is growing larger and the skin stretching tight. I emailed Dr. Schievink. He wants me to start Diamox, a CSF pressure reducing medication so the pocket doesn’t rip open the incision. I am already in low pressure because of the CSF collection. That already low pressure headache, nausea, eye and ear issues are so much worse on Diamox. I expected that. I can’t believe that I am flying across the country again so sick. I should be resting and recovering from the first surgery. That is impossible to do planning a second trip on such short notice.


Sunday, June 16, 2013 at 1:56am EDT

We fly to CA tomorrow.

[She actually means today, at 9 a.m. Sunday out of Cleveland. She is not sleeping and does not realize it is two in the morning.]

This flight is going to be more rough than the last one. I’ve got this big CSF pocket sticking out of my back that hurts. That has me in low pressure without the Diamox. Dr. Schievink has me taking Diamox to try to reduce the size of the pocket. The even lower low pressure makes me so sick….

[Remember this later, it is important.]


Monday, June 17, 2013 at 10:39am EDT

I haven’t talked with the doctor since Saturday. I must have said something on Saturday that concerned him. Here is his message this morning. “I am glad you arrived safely. Please refrain from eating anything and come to the emergency room. We will try to do surgery today.”


Cedar Sinai ER

Monday, June 17, 2013 at 11:30am EDT

[We called a taxi to get us from Joie’s to the hospital. When I tell the driver we want to go to Cedar’s ER he has look of panic on his face. I was afraid he would not take us. Told him it was not any emergency, even though Karen physically looked like it was. It is seventy plus miles from Joie’s to the hospital.

We arrive at the ER and are told to wait to register.

The only empty seats are next to a lovely looking young lady and a fellow rolled up on the seat doubled over in pain holding his gut moaning. The moaning fellow makes several urgent trips to the bathroom. Looks like a severe case of food poisoning to me. We find from his girlfriend they have already been there two hours waiting like this.

After a few more trips to the bathroom the fellow says he feels a bit better and tries to lay down on the floor. The seats have dividers between them, there is no way to lay on them. People with leaks need to lay down! We’ve now been waiting in ER for an hour and Karen decides to join the fellow on the floor.

Within seconds of Karen laying on the floor a nurse and a security guard appear out of thin air and demand that they get off the floor, she says: “The floor is dirty! If you want to lay down go outside (Into the parking garage ER pick-up area) and lay on the benches outside!”

#$@&%*! When was the last time the benches outside in the parking area was cleaned compared to the floor in the ER?

The moaning fellow goes outside as does Karen. His girlfriend wants to stay in the ER in case he is called for, he has now been there three hours, while also wanting to be with him outside. I tell her to go out with him, and I’ll get them if someone comes for him. She comes in and out a few times over the next half hour. They decide to leave and go someplace else for help. They wasted 3.5 hours in this place. I have often wondered how they made out. I’ll never know. Our encounters with each other in life affect us both in ways that we will never know.

After another half-hour for us waiting they finally register Karen and put her in a room where she can lay down.

Another half-hour passes, and Dr. Schievink’s resident doctor Dr. Ross arrives. We had met her on the last trip here. She was a knowledgeable person about CSF Leaks and showed concern for Karen. Karen is admitted and moved to a real room. After leaving ER things went well, as far as the hospital stay was concerned.

I slept on a cot in Karen’s room for the next several days. Karen and I are both exhausted, we have not slept or ate well and I’ve not been taking my usual regiment of vitamins because I did not want to have to deal with the TSA. I was already carrying Karen’s massive cache of meds with me as we were going through the airport. Karen and I never agreed when it came to medication. I saw what it was doing to her and avoid it at all costs.

Every trip to any ER related to CSF Leaks has been an absolute disaster! This needs to change!]


Monday, June 17, 2013 at 4:54pm EDT

Surgery was moved up to today. I don’t know the surgery time. I am not even in pre-op.


Monday, June 17, 2013 at 5:09pm EDT

I saw Dr. Ross in the ER. She agreed that that looked like a CSF leak.


Monday, June 17, 2013 at 10:13pm EDT

[Me speaking.] Karen is out of surgery, have not seen her yet. Doctor said he did not find anything wrong with the previous sutures. For unexplained reasons the suture was acting as a one-way valve letting CSF accumulate in a ‘pocket’. He said he put in more artificial dura to prevent this one-way valve action. I’ve been told that she needs to lay down for 24 or 48 hours (been told both) before moving at all.


Tuesday, June 18, 2013 at 10:30am EDT

I am out of surgery. He drained the CSF pocket. He didn’t find a direct leak site. That’s not surprising. He began pressure reducing medication last Saturday after seeing the pictures that I sent him of my back. That medication makes my low pressure headache so much worse. The pain from this headache *stretching the limits of the pain that I can handle*

Pain medication is not all that effective.

I’ve told the nurses. They’ll tell the doctor, and I’ll tell the doctor today.


Tuesday, June 18, 2013 at 6:45pm EDT

Last Saturday, the doctor put me on a CSF pressure reducing medication, Diamox. The idea behind putting me on pressure reducing medication when I was already in low pressure was to take the pressure off of what caused the leak into the pocket. Post surgery, the idea is to take the medication for the same reason. It’s this type of headache that is pretty resistant to pain medication not with me but practically everyone. The doctor was just in again. The plan is to reduce Diamox from three times a day 500mg, to twice a day 500mg today. I’ll be permitted out of bed tonight. Tomorrow he’ll look at my incision. If he sees no CSF swelling, he plans to change Diamox to Hydroclorothiazide. If I am still here by the end of the week, he suggested a blood patch. A blood patch is where they take blood from your arm and inject it near your dura, the covering of your brain and spinal cord.


Tuesday, June 18, 2013 at 7:08pm EDT

[How do you feel?] I am too exhausted to have much emotion left.


Tuesday, June 18, 2013 at 7:11pm EDT

Last Saturday, Dr. Schievink put me on Diamox. The idea behind putting me on Diamox when I was already in low pressure was to take the pressure off of what caused the leak into the pocket. Post surgery, the idea is to take the medication for the same reason. Dr. Schievink was just in. The plan is to reduce Diamox from three times a day 500mg, to twice a day 500mg today. I’ll be permitted out of bed tonight. Tomorrow he’ll look at my incision. If he sees no CSF swelling, he plans to change Diamox to Hydroclorothiazide. If I am still here by the end of the week, he suggested a blood patch.


Wednesday, June 19, 2013 at 6:54pm EDT

[Me speaking.] Dr. S said she might be able to leave the hospital tomorrow or the day after. We are staying at cousin’s in the LA area. She is to come back sometime next week for a blood patch. Right now they are trying to get her to go to the bathroom, she should have gone by now. Nurse says this happens about 50% of the time.


Wednesday, June 19, 2013 at 7:07pm EDT

[Me.] She went, and is now sleeping again. She says it is from having two major surgeries so close together and the flights home and back. I hope that is all it is.


Thursday, June 20, 2013 at 12:32pm EDT

[My response to a question here.] She is still mostly sleeping. Probably a good thing at this point.


Thursday, June 20, 2013 at 2:53pm EDT

Bob works from here. My back hurts, but my head is still a bit worse.


Thursday, June 20, 2013 at 6:43pm EDT

I am being discharged. The resident said that if I still had postural symptoms next week, they would give me a blood patch. Bob has a cold. Pray that I don’t catch it. Sneezing and coughing are on the list of things that I can’t do.

[This prayer failed. She did get it. (See:  “The influence of coughing on cerebrospinal fluid pressure in an in vitro syringomyelia model with spinal subarachnoid space stenosis.”]


Thursday, June 20, 2013 at 6:45pm EDT

I am being discharged. The resident said that if I still had postural symptoms next week, they would give me a blood patch. Bob has a cold. Pray that I don’t catch it. Sneezing and coughing are on the list of things that I can’t do.


Friday, June 21, 2013 at 5:36pm EDT

University of Pittsburgh is the closest to me. He said my dura looked abnormal, but didn’t go into detail when asked.


Friday, June 21, 2013 at 6:11pm EDT

Dr. Schievink gave me flexeril along with pain medication. I feel that flexeril helps some. It does not take away all the pain.


Friday, June 21, 2013 at 6:52pm EDT

I won’t respond to posts that bash someone. No doctor is God. They both have their pros and cons. They both have successes and failures.


Saturday, June 22, 2013 at 4:31pm EDT

Bob has cold. Pray that I don’t get it because coughing and sneezing are things that I am not supposed to do.


Saturday, June 22, 2013 at 7:45pm EDT

I had a second surgery to fix the spinal fluid leak that occurred either during, or after surgery. I still have more postural symptoms than I am comfortable with. I see the doctor on Tuesday for a followup. I start in-home PT here in L.A. next week. I am not sure why that was ordered. I go up and down stairs just fine, and can walk okay.


Saturday, June 22, 2013 at 8:15pm EDT

No leak is minor. Have you heard back from Dr. Schievink?

My head is a little better, but not as good as I had hoped. I start in home PT next week. I understand not wanting to live this way. I battle those feelings.


Saturday, June 22, 2013 at 9:53pm EDT

I have only my husband. Other than him, I am on my own. Anyone local that cares about me has their own health issues that prevent help.


Saturday, June 22, 2013 at 11:08pm EDT

I can walk unassisted. I limit myself to a couple short walks per day. My surgery pain is quite bad.


Saturday, June 22, 2013 at 11:11pm EDT

One day at a time. I struggle with wanting to end it all, if you know what I mean. Mine began with a car accident when I was 20. Whether I had an underlying weakness in my dura or not is unknown. Dr. Schievink cannot find the leak site.


Saturday, June 22, 2013 at 11:18pm EDT

You could have more than one leak sight.


Dr. Schievink did a full spine MRI with myelography, a repeat MRI with myelography of my thoraric spine because something didn’t look right at T2. My CT myelogram was normal. My DSM was normal. They told me that they will not do surgery on multiple locations at the same time in an attempt to control rebound HP. If I was in your position, I would be just as upset as you are. Spend all the time and money and not be any better.


Sunday, June 23, 2013 at 4:18pm EDT

Some, but not all of my pain is because I am not being active. I can’t be too active, yet.


Sunday, June 23, 2013 at 10:26pm EDT

[Karen is referring to someone else here, not herself.] What does Dr. Schievink think it is, if it’s not leaking? Did this fluid pocket show up on any scans at Cedars? I really love NOT how these doctors let us hanging.


Tuesday, June 25, 2013 at 7:50pm EDT

I can be up for about 30 minutes before all the positional symptoms start. Prior to surgery, the symptoms started immediately when I got up. He suggested trying a blood patch.


Tuesday, June 25, 2013 at 7:57pm EDT

I saw Dr. Schievink for my followup to the second surgery. I can be up for about 30 minutes before all the positional symptoms start. That’s an improvement. Prior to surgery, the symptoms started immediately when I got up. He suggested trying a blood patch. The person responsible for scheduling wasn’t there today, but should be there tomorrow. A blood patch is where they take blood out of your arm and inject it into your spine.


Tuesday, June 25, 2013 at 7:58pm EDT

I saw Dr. Schievink for my followup to the second surgery. I can be up for about 30 minutes before all the positional symptoms start. That’s an improvement. Prior to surgery, the symptoms started immediately when I got up. He suggested trying a blood patch. The person responsible for scheduling wasn’t there today but should be tomorrow.

[Two people can’t be trained in scheduling??]


Tuesday, June 25, 2013 at 8:26pm EDT

Bob’s cold is getting better.


Tuesday, June 25, 2013 at 8:28pm EDT

He said he wouldn’t put in too much blood because he did not want me to leak where he did surgery.


Wednesday, June 26, 2013 at 12:32am EDT

My reports say “No significant nerve root sleeve cysts.” I asked him what that meant, he said that I didn’t have any nerve root cysts that weren’t considered normal. I asked him about other types of cysts, as my reports do not mention any. He didn’t really answer that question.


Wednesday, June 26, 2013 at 7:30pm EDT

They use a 14 gauge needle for the CSF infusion. They say they need that big of needle for the catheter to fit through it. They use an 18 gauge needle for the DSM. I had both of these at L2/L3. I [tried to] convince Dr. Schievink to patch those. The blind blood patch he will do will be at T12/L1. I know that I am still leaking from somewhere…


Thursday, June 27, 2013 at 12:08am EDT

Darn pain gets to be so bad… I had to have pre-op tests today for the blood patch. I told them I just had surgery last week so why did I need pre-op tests again. They said pre-op tests were only good for two weeks. The blood patch is not scheduled. I will call them tomorrow about it. The sooner it’s done, the sooner we’ll go home.

[These particular set of tests made no sense to us at all. The ‘two week’ thing didn’t really explain why it was needed.]


Thursday, June 27, 2013 at 9:47pm EDT

I was allowed up only to go to the bathroom and wash. I get patched tomorrow. I think I may be coming down with Bob’s cold…


Friday, June 28, 2013 at 11:42pm EDT

[Doctor] did a 13cc blood patch at T11/T12. I have HP tonight that I did not have earlier. Keep your fingers crossed for me.


Friday, June 28, 2013 at 11:47pm EDT

What is the weather like in PA?

I am still in L.A. [Doctor] did a blood patch at T11/T12. I have higher CSF pressure tonight that I did not have earlier. Keep your fingers crossed. This happened before temporarily after blood patches.


Friday, June 28, 2013 at 11:56pm EDT

I wish that I had the right words to comfort you, but I don’t. So many things going on. The stress from one negatively impacts the others. My concern is that I now have Bob’s cold. I don’t want the coughing and sneezing to blow the patch, or the surgery.


Saturday, June 29, 2013 at 12:03am EDT

He was okay. I am concerned that my coughing and sneezing from Bob’s cold that I caught will blow the patches or surgery.


Saturday, June 29, 2013 at 11:48am EDT

I feel HP at bit in the top of my head and front. I am afraid of my cold undoing the patch or ripping open the incision. I caught a cold a couple days ago. Coughing and sneezing which I can’t help but do, are on the list of things not to do so soon after surgery or a blood patch. These things can rip open the incision or undo the blood patch.


Saturday, June 29, 2013 at 11:50am EDT

I caught a cold a couple days ago. Coughing and sneezing which I can’t help but do, are on the list of things not to do so soon after surgery or a blood patch. These things can rip open the incision or undo the blood patch. I’m being as gentle as I can with the coughing, but my incision is sore from it.


Saturday, June 29, 2013 at 2:20pm EDT

* I ‘pretend’ that I am not hurting, when I am with others. It’s hard. *


Saturday, June 29, 2013 at 6:36pm EDT

I have medication for the cough which helps but doesn’t take it away. Blowing my nose is just as painful.


Saturday, June 29, 2013 at 7:05pm EDT

I was patched yesterday. After lying down at Cedars for 4 hours after the patch, I still had LP. By the time I went to bed last night it was slight HP. My cold got worse during the night, so I don’t know what head pain comes from what at the moment.


Sunday, June 30, 2013 at 1:19am EDT

I was successfully patched by Dr. Gray from October to February last winter, and went through having both HP and LP. I had two surgeries from Dr. Schievink this month and a blind blood patch yesterday. So far, the blind blood patch is helping. Pray that I don’t blow the patch with coughing and sneezing from this cold!


Monday, July 1, 2013 at 6:29pm EDT

The blind blood patch on Friday has made a positive difference. I keep hoping and praying that my coughing and sneezing does not blow the patch or surgery. I am resting as much as I can. We may go home on the 4th.


Monday, July 1, 2013 at 6:36pm EDT

I had no HP after either surgery. In fact, I stayed in LP. The blood patch on Friday has given me slight HP.


Tuesday, July 2, 2013 at 9:16pm EDT

The doctors being clueless. The research into this condition just took off within the last decade.

[There are various funds being setup to educate doctors.


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